Do you ever think that maybe a diagnosis you received may have come back to bite you?

haui
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34d

No, not once. I’ve got ablot of issues due to nobody giving a shit when I was young making the tiniest effort to get shit diagnosed and properly taken care of. On top it was out of pure naivety due to the belief that if youre not diagbosed its not true and partly science denial.

I’m on the autism spectrum, with very low support needs. My health care provider has that in my medical records. Now I’m worried that I’m going to disappear into some camp, and my wife will never know what happened.

The psychologist who did like a shortened test on me actually recommended against going further and also getting diagnosed by a psychiatrist if I don’t want any official support. Just not worth a lifetime of discrimination within the medical system. I’m noticing it happening with my ADHD diagnosis. That one’s worth the discrimination though, since the treatment is a life saver (potentially literally).

Agreed, treatment changed my ADHD life. And it’s still nowhere near removing all of the symptoms

I’ve never been happier not to have an official diagnosis. My wife and I are considering our options.

Ireland? New Zealand? We both have semi in demand skills. I’m a tradesman and she’s a social worker. Realistically we’re stuck here but looking at what we might be able to do

I'm_All_NEET:3
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16d

Why?

RFKjr is setting up a national autism registration and he’s already proposed to send neurodivergent people to farms. It’s pure Nazi eugenics.

My pet goldfish was also sent to a farm when I was a kid. Sending people to farms sounds like a euphemism for extermination.

ironically, he’d have to join himself.

I did a search, and discovered articles pointing to sending addicts to farms. I couldn’t find anything similar for neurodivergent people.

Can you link something?

@locuester@lemmy.zip
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The article specifically states that the reason for getting this info is to link with other datasets to look for causes for the increase in autism cases.

“Linking CMS claims data with a secure real-world NIH data platform, fully compliant with privacy and security laws, will unlock landmark research into the complex factors that drive autism and chronic disease — ultimately delivering superior health outcomes to the Americans we serve,” he said.

It makes no mention of farms for neurodivergent people. That’s some nonsense.

He’s “looking for a cure” that he knows doesn’t exist. This is eugenics.

Where do yall come up with this stuff, and do you actually believe it? He’s attempting to find the CAUSE of autism by joining datasets. Any mention of CURE would be in the context of curing society of the problems causing it. That’s all.

I swear yall are either master misinfo spreaders or so blind across party lines that you don’t use your brains or something.

Autism and ADHD are naturally occuring neurotypes. It’s like trying to pray the gay away, and they know it. Consider this and the context in which it’s coming up - immigration, gay/trans fearmongering, a sudden and completely wrong approach to “curing” autism. This guy isn’t talking to the best and brightest in the field for a reason. History may not repeat, but it rhymes. There was a famous book burning. It was LGBTQ+ research/materials. Look into who Asperger actually was. They’re coming after queer and disabled people first.

It’s coming up in the context of believing that autism is caused by vaccines. It’s not, they’ll find it’s not, and we will move on.

Your conspiracy theories are baseless and wild.

We already know that autism isn’t caused by vaccines, and if anything, the reverse is true. Yet we have a guy with zero medical background peddling this and antivaxxer nonsense at the top of HHS. If you still can’t see a connection between stuff like this and social darwinism/eugenics, you can start by looking at someone he wants working on this. He worked with his father, and they experimented on autistic children. His father lost his medical license over it.

https://www.nbcnews.com/health/health-news/hhs-taps-anti-vaccine-activist-look-debunked-links-autism-vaccines-sou-rcna198214

See the following about how his father lost his license in Maryland. This also happened in other states.

https://centerforinquiry.s3.amazonaws.com/wp-content/uploads/sites/33/2021/04/22172014/alj_2012.pdf

Here’s a link - on Fox of all places - about RFK and “wellness farms” for various things, including the ADHD stuff you had trouble finding. “RFK ADHD work camps” does the trick.

https://www.foxnews.com/politics/how-rfk-jr-wants-help-treat-addiction-wellness-farms

When some rich guy comes outta nowhere and tell you that vaccines are bad, and folks with addictions, mental disorders, or happen to be a bit different from most just need to work on a farm for a while, your first thought shouldn’t be “wow, he’s really trying to help people.” If you’re still stanning this jackass after all of the above, I don’t know how else to help you, but I definitely know you haven’t worked very hard on answering your own questions above. Maybe a farm is hiring, IDK, but I’m done here.

@locuester@lemmy.zip
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Oh I hear ya on the whole dad medical stuff and the sketchy screwed up stuff going on there.

But you lost me when you jump from rehab (on farms) for addicts and adhd to farms for neurodivergents.

or happen to be a bit different from most just need to work on a farm for a while

This is where a leap happens that I’m not following and I believe is baseless, but I’m trying to uncover that.

If it’s simply based on his desire to try that treatment for some conditions and assuming he will suggest it for this one, I personally don’t think that’s a fair leap, but respect your desire to think it is. If there is more to back up this theory, I’d like to hear it.

That has nothing to do with autism. He’s never even insinuated that neurodivergent people need nature and “farming” to recover.

Interesting opinion in the article though. I’m pretty interested in his full idea/plan with mental health treatment. I recovered from a lifetime battle with alcohol at a men’s spiritual recovery center which operates on similar principles. So I have a unique view into that.

Again tho, completely unrelated to his investigation into the causes of autism. Why are you conflating the two things?

I wasn’t trying to conflate the two things. I was providing a source on where the “farms” came from, and clarified that they were meant to help “drug addicts” (not minimizing your experience- just reinforcing that the wording is already not great from a lens of treating maladaptive substance use, in addition to being completely inappropriate for people who take prescribed medications.)

I neither agreed not disagreed, though I do find it problematic to be enrolling people who are neurodivergent into any kind of list for any reason without their expressed consent and ability to withdraw that consent at any times. If the reason is purely investigation/research as you say, then I believe that it should be under the same rigor and ethics considerations as any other research.

I believe that it should be under the same rigor and ethics considerations as any other research.

It’s NIH doing it. I don’t think there’s any reason to think the standards would be any different.

RFK considers people with ADHD who are perscribed stimulants to be addicts

What?! Can you provide some sources on this?

That seems to be complete nonsense. RFKjr is working to determine the cause of the increase in autism rates by linking datasets. Specifically looking into correlation with vaccines.

There has never been talk of sending neurodivergent people to farms or camps.

If that really was his objective he wouldn’t have cancelled NIH funding into research on autism. You are either ignorant or disingenuous.

?? Trump made cuts to agencies across the board - that’s not an RFK thing. So yeah, some research funding to autism related studies is affected. Primarily through the DoEd cuts.

It wasn’t targeted, and even if it was, trying to link defunding with an initiative to find causes by joining datasets seems either disingenuous or ignorant.

What was the lie? I mean, do you have a source to anything you’re saying?

Here’s an article from time: https://time.com/7279068/trump-administration-autism-research-cuts/

Ffs America you’re supposed to be setting the example here

Dojan
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146d

Lmao, when?

after pearl harbor, just before hiroshima

Yah, well, this time the US is invading the US to give it some much needed ‘freedom.’

@IttihadChe@lemmy.ml
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~ Germany, Dec 8 1941

“This Hitler guy needs to get his shit together, come on!”

Undefined veritable detected, auto filling… … …

BAD EXAMPLES WILL BE SET.

diegeticalt (any)
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deleted by creator

Didros
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36d

American

I know my wife wishes she had never been officially diagnosed with depression, as it precludes her from some jobs she wanted to apply for. How true this is is reality, I don’t know.

Not sure where you’re located, but at least in the USA it’s definitely illegal for an employer to discriminate against a medical diagnosis like that. They aren’t even allowed to ask you private medical questions during the hiring process.

It prevents you from jobs like airline pilots, the rationale being that placing someone potentially suicidal in control of a plane full of people isn’t a good idea. The rationale doesn’t really make total sense but you can see why they’d think that way.

except that airline pilots end up depressed and untreated instead of just not depressed.

But depression isn’t a thing normal people experience! It’s only the mentally ill and we don’t want them at the controls… /s

Oh yeah definitely, that’s a major problem that’s specifically created by this policy.

Nope, can’t see it at all.

Then you lack imagination. It’s actually happened and not that long ago that a pilot intentionally killed himself and took the entire plane with him.

https://en.wikipedia.org/wiki/Germanwings_Flight_9525

It’s illegal unless there’s a bonafide occupational qualification that your disability prevents you from performing. Like you couldn’t apply for a job as a furniture mover if you’re a quadriplegic and cry discrimination when they don’t select you. And the employer can ask things like “this job requires that you lift heavy objects of up to 600lbs with the assistance of another person and a back brace. Do you have any medical or other reason you could not perform these duties?”.

Now if that weren’t a real occupational qualification, that’d be discriminatory. Like if they said you had to be a man for that moving job - there’s no reason you have to be a man, you just have to be able to move 600lb things.

Didros
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26d

The government enters the chat

I am really glad and very priveleged to have been diagnosed with ADHD. However, I worry that my official diagnoses might put me in danger soon

OADINC
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15d

In the Netherlands you can remove your ADHD diagnosis (at least when moving from child to adult care, if I recall correctly)

Had a hard time figuring out life in my early 20’s. Sought help, and got a mental health diagnosis and some meds that I took for a while. 20 years later it’s clear that it was either a misdiagnosis of simple existential angst, or I figured shit out in the meantime. Paying 40% more for life insurance and need reports from the doctor I haven’t seen in 18 years each time I have to renew security clearance.

I wish I straight up just didn’t have the things I was diagnosed with. The diagnosis themselves haven’t changed anything other than now I at least know I am not a piece of shit on purpose.

I get this. All the time.

Is it the depression or is it just me? Am I just a piece of shit?

I'm_All_NEET:3
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15d

I’m really feeling this, man.

Celiac is a real pain in the ass and makes me sound unhinged at a restaurant.

Are you severe? Any complications as a result?

I’m not sure if I’m severe - I get a three-day migraine that is not unresponsive to medication if I eat gluten. 🤷 I was vitamin deficient and had damage to my intestines, but that’s fixed now. I have a lot of other weird food stuff going on, but am still unclear if it is even related. The biggest complication is not being able to eat out easily. And I’m that person at parties that I brings their own food.

I’m so used to not eating out, eating at family gatherings. Cooking everything from scratch with salt only. Low fodmap, low sugar, low fat. I have SIBO. Liver issues, kidney failure, migraines, basically systemic issues. Can’t tolerate anything hardly at all. Top 9 allergen free. I feel like a basket case of issues with mine. So I was curious about you.

Oh! I didn’t realize it can cause other things. I have hashimotos, can’t eat soy or animal products and am dizzy sometimes when holding completely still. You are not alone - I just didn’t connect all of mine with celiac.

I’m just so tired of checking every single ingredient list.

Also tired of terms at restaurants like “Gluten Aware”, “Gluten Conscious”, etc. Then you find out everything is still going in the same fryer 🫤

I really appreciate places like Subway and Taco Bell that just tell you up front they probably have cross-contamination on everything. Most places the workers don’t even know what gluten is. When I explain, they think I should just say I don’t want bread.

Subway is way off my list. They cut the bread over the meat. You can watch the crumbs fly right in.

Also tired of terms at restaurants like “Gluten Aware”, “Gluten Conscious”, etc. Then you find out everything is still going in the same fryer

At least they’re aware of it.

Gluten appears to be pixie dust just thrown about in kitchens and mass food production facilities. It is shocking how much contains it or is near it.

I haven’t heard of a gluten aware restaurant. But the term sounds irritating.

How would it be better if you hadn’t been diagnosed?

I guess I was thinking if I didn’t have it, which means I could eat everything without having to ask a million questions or carefully researching products/ingredients.

If I wasn’t diagnosed but still had it, I’d be very sick and malnourished.

I’m 50/50. On one hand it’s interesting and good to know about yourself and your issues but it is a double-ended sword. I was diagnosed with ASPD a little while back among other things and while I’m glad I understand the root for a lot of my problematic traits I now also have a piece of paper that makes me look bad if I have to go to court.

Didros
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76d

…diagnosis from who?

Myself: meh, I could be wrong, I’m not a professional.

Doctor: hahahahaha what? What am I? Made of money?

I'm_All_NEET:3
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-16d

You made it sound like you were going to be imprisoned.

Didros
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66d

Wut?

I’m not diagnosed and I’m seriously considering keeping it that way. My nephew is so hoping the political situation in the UK doesn’t go that way.

I wish I hadn’t been diagnosed with cystic fibrosis but mostly I wish I didn’t have it

I will never be able to get a small engine private pilot license due to fainting, despite it literally never happening unless I’m standing up…

Airplanes pull G, making it far more intense than being standing. You would absolutely faint in a plane; this one is kinda fair, sorry bud.

I’ve got 10 hours in a little ultralight. Pre-diagnosis. I’m not looking to fly a jet fighter. I get more G’s in a hang glider.

Didros
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26d

…I agree with this one. You fainting in a plane turns you into a missile after all.

See, and this is why… Except, again, I only faint standing up. Ever.

It ain’t nothing, but fuckin eczema lol. Gotta lotion up every day and even then, sometimes you get random flare ups.

It’s good to know that I was diagnosed with food allergies. I might not have ever known what was making me feel horrible all this time.

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